Sunday, May 9, 2010

Day 23


Mother Warriors

Jenny McCarthy wrote a book about her son's battle with Autism and referred to some of the other mothers as warriors in this battle. Well Dawn fits this profile exactly. She is Ryan's warrior. She is relentless in her pursuit to help Ryan. I mentioned in an earlier post that our original appointment with Dr. Bock was on November 8, 2010. Yet, Dawn managed to get Ryan appointment on May 6, 2010.

Dawn tracked down Dr. Sydney Baker, one of the founders of DAN (Defeat Autism Now!). He was one of the doctors that help to train Dr. Bock. She somehow found his home phone number. She spoke to his wife for a little while and then she gave Dawn Dr. Baker's cell phone number. When she called the number he answered! They spoke for a while and he was able to get Ryan in next week. He asked for Dawn's email address so he could email the forms that we would need to fill out for the appointment. The only bad part was that his office was in Sag Harbor on Long Island. Instead of just taking the appointment Dawn called Br. Bock's office and left a message telling them the story. That afternoon Dr. Bock's office called and said that they had a cancellation and could fit Ryan in on Thursday. While we know that the office had a cancellation we had a feeling that given the situation and the fact that Dawn was talking to his mentor we moved to the top of the list to be rescheduled!

If you have been reading the blog or following the Ryan Express face book page you will have noticed that Dawn is a huge driving force in helping Ryan. She has set up our team to do the Autism walk, designed T-shirts, developed this blog, set up appointments, read every book on Autism, started Ryan on the GF/CF diet, found every store in our area that has food for Ryan, looked into all of the supplements that Ryan will need on the new diet, contacted his schools to be sure Ryan would be able to stay on his diet, and is in the process of setting up a Not-for-Profit organization in Ryan's name to help those that can not afford to see DAN doctors or buy food for the GF/CF diet.

Like I said Dawn is Ryan's Warrior and on this Mother's Day Ryan is very lucky to have Dawn as his Mother! Happy Mothers Day Dawn.

PC

PS The cake was fantastic and a big hit!

3 comments:

  1. What a wonderful tribute to your wife Phil. You are a formidable team together for Ryan.

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  2. There are no words big enough to describe how lucky Ryan is to have parents like you both. I read your blog faithfully every single night...tonight I got goosebumps. You both are role models and a true inspiration to those around you. <3 love you xo

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  3. I love this post, your are so right Phil, I love reading this blog.

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