Showing posts with label cake. Show all posts
Showing posts with label cake. Show all posts

Sunday, October 3, 2010

Week 24

It's been a little over 6 months since Ryan was given an official diagnosis.  We're thankful for that happening because without it we may have never jumpstarted his road to recovery.  But the fire was lit and we're on our journey.  There have been ups and downs but the child we see today is a very different child than the one who frustrated and confused us a mere 6 months ago.  This week I want to share with you just a few of the differences...

Just today I watched Ryan sit at the kitchen table and play a game of memory with my mom and Julia.  I thought back to the times when his speech therapist would try to work with him at our kitchen table.  She would pull out a game and try to teach him to play.  He would lose interest in less than 5 minutes, and it would frustrate her.  But today he stayed interested in the game and participated for about 20 minutes.  He even made several matches and was very excited.  Each time he got a match he would get to go again.  Of course this would upset Julia because she didn't understand why it wasn't her turn.  A couple of times Ryan actually refused to have a second turn and let Julia have her turn.  This shows me that he is learning how to be sensitive to others' feelings and he can learn how to be compassionate.  The social aspect of Ryan's life is one of the things that Phil and I often worry about, but this incident is certainly a step in the right direction. 

Ryan has never liked anyone touching his hair.  While he's come a long way letting me cut his hair every once and a while, he actually let my mom try a hat on his head this week.  She's crocheting a hat for him and wanted to measure it on his head half way through.  He actually let her try it on his head, and not just once, but several times that day.  I'm proud that he let her put something on his head, but also that he is learning to be accommodating to others' requests.

Ryan has been obsessed with trains for a long time.  During the past couple of weeks his new thing is to take his train set off of his train table and reassemble it across the living room floor.  He comes up with a new design everyday and will play for hours.  Sometimes it's a simple straight line or circle or U-shape.  But on other days he creates these intricate setups that are very impressive.  Here's a picture one of his designs from this week:














We were at a birthday party this week and Ryan did a nice job playing with all of the kids.  At one point he was pretending to be a the ping pong bandit from an episode of The Backyardigans, and didn't want to break character.  He walked around the room reciting lines and acting out scenes from the show.  He certainly stood out from the other kids and drew attention to himself.  When it was time for cake Ryan was upset that we brought him one of his special cupcakes.  He so badly wanted the birthday cake with blue frosting that everyone else was eating.  Phil brought him outside to explain to him that it wasn't his special cake.  I put his special cupcake on a cake plate and cut him a tiny sliver of the regular birthday cake.  Although it was only a forkful, Ryan's eyes lit up when I showed him the cake.  He asked me a half a dozen times if he was allowed to eat it; he wanted to be absolutely sure that it was okay.  I think he was shocked that it was on his plate.  Did I give him mixed messages?  Sure.  Will he demand a piece of regular cake the next time we are at a party? Possibly.  Should I have given in?  Not according to the GFCF egg-free diet police.  Do I regret my decision?  NO.  For the thirty seconds that it took him to eat the forkful of contraband cake, he got to feel like he was just like every other kid at that party.  And he went on to eat his cupcake and enjoy the rest of the afternoon (with red cheeks, of course).

On a different note, I made Ryan turkey meatballs and he loved them!  They were GFCF and egg-free, and we all found them very tasty.    

Ryan's teacher has the kids doing a lot of art projects.  We are impressed with the progress of not only his artwork, but also his ability and willingness to explain things and tell us stories.  I have been trying to upload a video of Ryan explaining some of the projects but after numerous hours of attempts, I'm giving up.  Maybe the file was too large.  I'll try a different video next week.

DC

Monday, May 10, 2010

Day 24

Let's talk diet, annual review meeting, and then the mushy stuff!

Ryan didn't want to eat dinner tonight. He remembered we had a leftover piece of cake in the fridge and he spent about an hour whining for it. Even my two-year old commented that he was "cranky". On the way home he told me he wanted soup for dinner. So I made him soup with some GF broth and GF elbow pasta. But as soon as I put the bowl down in front of him, he didn't want it. We offered him several other options but he kept whining for the cake. Julia finished dinner and ate her cake, and the tears poured out. I felt so bad watching him cry. He was craving sweets! I didn't want to give in and make him think he was going to get cake every time he refused to eat dinner and cried. So I told him if he took his medicine he could have his cake. He immediately got up and drank the cod liver oil, and then enjoyed the cake. We still can't pinpoint what is going on with his skin. He came home with some severe scratch marks, red blothes, and of course his cheeks were red. I wish we didn't have to wait until July to get his test results to see if there is something evident causing an allergic reaction.

We attended Ryan's annual review today. We're happy to report that he will maintain the current services he is receiving, and then some. He will continue his program through the summer, and for the fall his program was increased from 1/2 a day to a full day (5 hours). He will also continue with speech services, and they added O/T and group counseling.

I was very touched by yesterday's blog. I received several emails from people commending me for what I do for Ryan. The truth is I wouldn't be able to do even half of it without the support of my husband, family, friends, and colleagues. And let's not forget the wonderful people who help Ryan all day long while we're at work. All of you motivate and inspire us. We're so grateful for the people in our lives. Thank you for helping us help our little boy!

DC

Friday, May 7, 2010

Day 21

New foods. Tonight I made GFCF pizza for the first time. Granted, I bought the dough premade, but I've been wanting to try it to see if Ryan would eat it so I thought tonight was a good night to try it out. I topped it with fresh tomato sauce and a Vegan tofu "mozzarella" cheese. The cheese melted and got all bubbly and tasted really close to the real thing. Ryan walked through the door and immediately noticed the smell of the pizza cooking. And he said, "Mommy, you're making pizza?" So I felt good that it at least smelled like real pizza. And he ate it and I think he liked it. He asked for a second helping. He certainly didn't eat as much as he would have prior to this diet but he ate it. And we ate it too. Well, not all of us. Julia took one little bite and announced that she didn't like it. She has no filter! But it was okay because it didn't stop him from eating it.

Next task was to make a GFCF cake because we are celebrating Ryan's birthday on Sunday. I had good intentions to do it tonight, but it was a very exhausting and emotional day and I need to walk away from the computer and rest. Tomorrow is another day!

DC