Dawn decided that the huge amount of supplements that we were given at our last Dr. Bock visit was too much to handle at once. So she decided to organize and now we have a spreadsheet that we use to keep track of the 20 or so different supplements and the two different prescription medicines that he is now on.
We have him taking a full teaspoon of Nystatin 3 times a day now and one teaspoon of Gentamycin three times a day to counter the bacteria found in his blood work from our first Dr. Bock visit. We are also adding several drops of Liquid Molybdenum to his food to help with Iron deficiencies and other cellular issues also found in the blood work.
In addition Ryan's behavior has been excellent this week. Whatever the issues were with our trip to Virginia seem to have worked out. He did great and his speech is really improving. We went over to a neighbor's house to use the pool and they even noticed that he was talking more and that his articulation was much clearer. He was making eye contact and was engaging them in conversation. He thanked them for using the pool and for the food that they brought out. These are the first people that we had met when we moved in to our house and they have watched Ryan and Julia grow up. We went to a small family BBQ that they had last night and he was great in the pool. He swam over to them and talked a little while with them and their relatives. He gave them high fives good bye and swam away. It was a real good week.
We also took a one day mini vacation with Nonna, Tommy, and the girls to the Great Wolf Lodge in Pennsylvania. It is an indoor water park in the Pocono Mountains. They all had a blast. We all were able to stay in the same suite and Ryan did fantastic with the whole event. The water park had water spraying from all different directions from several of the climbing areas and he did really well. It took him a little time to get used to it and had did have trouble with his sensory issues with the water spraying into his face and the noise. But after a few hours he was able to walk through the spray.
He also loved the tube rides in the park. It was a huge climb to the top of a tower and then ride into dark tubes into a pool of water. He loved it! At first he wanted to go on the ride with Dawn or myself, but then he saw Amelia go by herself and then he wanted to go by himself all the time. It was a little scary for us to watch him go off into the dark tubes alone at four years old but he had no fear.
He had such a great time that after the first day he fell asleep at dinner.
Food was not a problem at the place. We asked our waitress about different food options and she got one of the chefs to come out to meet with us. He was able to make some chicken for him and cut up some potatoes to make fries for him. They were very accommodating and there was never a problem. The place had refrigerators in the rooms and we were able to keep Ryan's medicine cold. He was also great at taking the medicine at the lodge as well. Granted the medicine tastes like candy and it does not have too bad of an after taste. It tastes a lot better then the oils that we have to given him!
On the last day that we are at the lodge Dawn met a couple that had two little boys (four and five years old) that were also Autistic. However, they were much further down on the spectrum to the point that they were non-verbal. Dawn starting talking to them and they were taking their boys to a hospital for OT, Speech, and PT several times a week. We found that they were not on the diet, they had never taken her boys to a DAN! doctor, and were surprised at all the tests that Ryan had from Dr. Bock. It was a short conversation as her boys were running away. Hopefully Dawn gave them some ideas and a different point of view.
Also this week, Papa made a spinning board for Ryan to use. His OT person, Ms. Mary, uses this spinning board with Ryan and Dawn took the measurements of the board the she uses. She sent them to her father and he made a board for him. Both Julia and Ryan sit and spin on this board all the time. It is to help with the fluid in his inner ear that helps with sensory issues. He is to sit and spin ten times in both directions, then lay down on the board with his cheek on the board and spin in both directions again. Dawn looked up this board on the internet and it was over $150 dollars! Hopefully having the board in the house all the time will help.
PC
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