Sunday, January 8, 2012

Week 90

We have been so busy the last few weeks.  We have had a lot going on and the blog has taken a back seat.  But we are back and have some updates for you.

Just after our last blog entry, Ryan was retested for speech. This was something that he received 3 times a week last year but our current school district cut it out of his IEP.  Now they are telling us that they noticed that Ryan had some speech delays and they wanted to get him tested.  This is something that made us both angry, because we fought to get him speech this year but they refused.  Now they are telling us, as if we did not notice, that Ryan was behind in his speech and that he needs to be tested.  He could have been receiving speech services these past five months if they listened to us back in May.  But he was tested and we have a meeting next week to set up his speech services for help with pragmatics and language.

Ryan had a lot of fun this Christmas.  This year we had Christmas Eve, Christmas Day, and the day after Christmas all at our house.  We had a lot of company visit and Ryan had a great time playing with his cousins.




His large gift from Santa was a Lego table which he sits at almost every day and plays.

While everyone was having a great time, this was the start of Phil's medical problems.  Phil had to be rushed to the ER for kidney stones on Christmas morning, right in the middle of us opening gifts.  He was in the ER for over 4 hours.

New Years Eve we spent at Dawn's parents' with Uncle T, Auntie B, Amelia, and Alyssa.  The kids had a great time staying up to watch the ball drop and ring in the new year.  It was another exciting time with the cousins and Ryan had a lot of fun learning how to play pool with Papa.

Pillow fight with Amelia

Happy New Year!

Ryan displayed good patience learning from papa how to hit the ball.

After the New Year, Phil had his kidney stone blasted.  He had so many complications with this procedure that he ended up back in the ER three more times in four days, and finally had to be admitted to the hospital for emergency surgery to remove the stones and drain the infection out of his kidney. This surgery was supposed to be a simple, in and out procedure, but since nothing with these kidney stones had been simple so far, neither was this.  Some complications arose and he spent two nights in the hospital.  He was discharged today (Sunday, January 8, 2012) and both kids were very happy to see him (and mommy too!)

The break from school during the holidays, and constant change in care givers as we spent so much time back and forth in the hospital this week, threw Ryan's schedule off tremendously.  He did not want to go back to school after a week and a half of vacation and gave us a real difficult time getting ready in the morning.  He does not want to do his class work and even forgot to bring his backpack to school one day.  He's also giving us a difficult time about writing his last name and doing homework.  He seems a bit depressed about going to school, and we'll be discussing this further during his CSE meeting at school next week.  Hopefully with everyone getting back to a regular schedule Ryan will settle back into his normal routine.

Although it doesn't seem like we've had the best of starts to the new year, we do have a lot to look forward to this year!!!

12 weeks

We hope that everyone had a wonderful Holiday Season and we wish you a very Happy New Year.

PC and DC

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