When we first started this blog we were focusing on the GF/CF diet. But after 52 days we seem to have the diet down. The fact that the medical profession thinks that this diet is one step above witch doctors is amazing to us. We know that this diet does not work for everyone but not giving it a try or having any serious medical studies seems insane to us. I guess if they have a study that shows that this works, then there must be a cause of Autism besides genetics. Most parents get over the why of Autism fairly quickly. Most people are practical and want to know what they can do now to help their child. This diet, while difficult at first, has been a life saver for both us and our family.
In this blog we seem to be doing more of a combination of diet and trials of having an Autistic child. Our new trial is Occupational Therapy. Ryan was tested in October and found to have a 12% delay. He was re-tested in May and found to have more than two standard deviations below the mean in several areas. Yet at our annual review our school district is telling us that since Ryan is only having OT for six weeks there is no way to show regression in skills. This being the case, they will not authorize therapy over the summer but will pick it up in September. To us this seems crazy. If his lack of skills went from 12% to over 25% in six months, how does this not show regression in skills? We know that New York State changed the rules and that school districts are now required to pay a percentage of costs for pre-school services. This is a new rule and districts are scrambling to find ways to cut costs. But what are the cost of these savings? So we are now consulting an attorney and going that route. As educators we used to wonder why special education parents were so crazed when they got to the secondary level. Having only been a special education parent for a year, we have become those parents. We completely understand these parents now. Having to fight through all this bureaucratic insanity will make anyone crazy.
We will keep you updated.
PC
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We began this blog to share our experiences placing our son Ryan on a gluten-free, casein-free,(and now egg-free) diet. The diet is one part of the healing process we have in place to rid his body of toxins and improve his Autism Spectrum behaviors. We hope that someday our stories will help other families who have chosen to follow this diet. Over time the blog grew into much more than that. We are sharing just about everything that goes on with Ryan while he's on his road to recovery!
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